Autism: Surviving and Thriving

Fourteen years ago my youngest 3 boys were diagnosed with autism within a 9 month span. Devastation and grieving followed. Doctors gave me little or no hope, but they didn't know me very well. I refused to believe that my boys were doomed.

My boys are now young men, adults with autism. They are thriving, but every day presents its turmoil and challenges.

My family: husband Mike, sons Ryan 23 yr, Nicholas 21 yr, and Cameron 18 yr. (Ryan and Nick have autism; Cam has recovered from autism.) Our oldest sons, Michael 34 yr and Stuart 25 yr, moved out of the house. Ryan has also moved out, and is still working towards complete independence.

Saturday, March 12, 2011

Angels or Hellions?


I gave birth to the sweetest, cutest kids on the Earth. They were angels, or so I thought.

They are growing up. Not so cute and sweet anymore. Hellions? They back talk. They decide when to obey and when not to. Or do they?

One of my sons who will not be named decided to try the above scenario. It did not work. My son got angry. Unfortunately, I did too.

After we both took time away, I sat my son down. We talked it out. We both apologized. Then I explained why the Good Lord put the fourth and fifth commandments so close together. When children forget about the fourth commandment, which is honor your father and mother, parents can't kill their offspring, as the fifth commandment states--you shall not kill, even though the parents might be tempted.

My son got a laugh, but he understood. Parents are human too. We can make mistakes, just like kids. The point is to keep trying our best, and learn from our mistakes. Keep going. Keep loving!
photo credit:treasureofthesea

Saturday, February 26, 2011

Consoled By A Little Fat

A mom must remain optimistic. A sense of humor doesn't hurt either. Sometimes kids, even with autism, unknowingly provide opportunities to laugh.

Case Study:
Over the last six, stressful months, I have put on a few pounds. These pounds are definitely not needed nor wanted. I voiced that thought. My son, Ryan, heard me. He tried to console me, "Mom, you are not REALLY fat. You're just A LITTLE fat." I was not sure how to react. He was sincere. He spoke the truth as he saw it. I ended up laughing.

Here is an autistic teen trying to make me feel better. Of course, I would have preferred no mention of "fat". I had to laugh and go with it. I also noted that Matt is developing empathy in a relationship; that is not typical of many kids with autism. So I applaud Ryan.

Sunday, February 20, 2011

Mixed-Sorted Laundry

Nick surprised me by doing the laundry yesterday. I expressed my gratitude, and I had to suppress a giggle. I hope I hid my shock. Why would I have gratitude, giggles, and shock? Well, Nick did the laundry!

Last April I worked a seasonal job, and I asked for someone to take the responsibility of washing clothes. Nick volunteered to do the laundry. I taught him how to sort by colors, which temperature to use, and what each cycle meant. I showed him how much detergent to use. He did quite well after several practice runs. While I worked, he did fine.

Well, several months have lapsed.

Yesterday, he sorted the clothes by dark colors, whites, and towels. I watched him do the first load. He picked the towels. He tossed them in the washing machine. He put in the correct amount of detergent on the correct cycle. YEA. He remembers! All my concern faded quickly, and I left.

About an hour later, Nick announced that he had switched the loads. Everything was going smoothly. I smiled. I could focus on other items demanding my attention.

Another hour lapsed, and I walked by the laundry room when Nick was switching the current load from the washer to the dryer. I noticed a mix of white and dark clothes coming out of the washing machine. ??? I saw him sort the clothing. What had happened?

Nick explained that he put in the white clothes, but there wasn't enough to fill the washer. He knew that he could only run the washer on a full load, per my instructions. Consequently, he put in the dark load to fill the machine. The whites remained on the bottom, and the dark clothes were on the top. They were still separated. Really?!

From his perspective, yes.

He had sorted the clothes. He followed Mom's instructions to not run the washer unless it was full. He did as directed. Literally. Nick was proud of himself!

Yes, Mom could scream, laugh, or frown. I chose the laugh.

I did explain that the reason for sorting is to NOT mix them in the machine. I showed Nick how to change the water level in case this ever happened again. I had to rephrase the instructions of the "full washer". TRY to run the machine as full as possible. If it isn't full, either wait until there are more clothes, or switch the water level.

Only time will tell if this lesson is learned.

Life with teenagers who have autism. It keeps me on my toes. Definitely need to keep a sense of humor and optimism.

photo credit:Average Jane

Thursday, February 10, 2011

Do Not Worry--Easier Said Than Done


Matthew 6:33-34

33 But seek first his kingdom and his righteousness, and all these things will be given to you as well. 34 Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.
This is my favorite passage out of the bible. It answers all worry and strife.
First, seek God. He made us. I just wish He gave us a roadmap in plain English, especially when it comes to raising our children--with and without special needs. I guess that would be too easy, and that would not make us seek Him out.
Side note: If it's any consolation, a line in a movie made me feel much better about raising kids. Paraphrased, in all the history of mankind, not one child has been raised right. (Mrs. C. please help with the name of that movie, starring Jimmy Stewart.)
Second, God will provide us what we need. We may disagree with the timing and with the things required, but He will provide. I think this is the hardest to accept.
Third, it says, ..."do not worry..." How much effort and time are wasted worrying, and does it solve anything? No. I think moms are wired to worry, but we'd be more effective if we overcame it. Sleepless nights spent thinking about something that we can't change only produces black circles under the eyes and crabby attitudes. Of course, that is easier said than done.
Here is more of the passage:

Matthew 6:28-34

28 “And why do you worry about clothes? See how the flowers of the field grow. They do not labor or spin.29 Yet I tell you that not even Solomon in all his splendor was dressed like one of these. 30 If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you—you of little faith? 31 So do not worry, saying, ‘What shall we eat?’ or ‘What shall we drink?’ or ‘What shall we wear?’ 32 For the pagans run after all these things, and your heavenly Father knows that you need them. 33 But seek first his kingdom and his righteousness, and all these things will be given to you as well. 34 Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.

Footprints with a Twist-Part II

There is no doubt that the imagery and faith conveyed in the poem, "Footprints in the Sand", are beautiful, personal revelations by the author. I am positive that many people have found consolation and hope via this poem. In fact, I have found inspiration by reading this poem in times of difficulty.

So why do I say my experience has been different from the warm and fuzzy ending? When I have spoken with people about this, I usually get a laugh and a comment, "That's twisted." So be warned.

When I have been carried, I have not necessarily gone quietly. I was probably carried in a fireman's hold because I was kicking and screaming. I could have been carried, well, dragged which would have left a stream of lines and footprints, indicating I was trying to run away. I was carried like a rebellious child throwing a tantrum because I didn't like what was ahead of me. I didn't want to face it. I didn't want to deal with it.

It? What is "it"?

I certainly didn't volunteer to be a mother of two autistic teens, let alone of four kids with disabilities at one point. I didn't want to mourn a child lost in a miscarriage. I could list a myriad of issues and problems. Alas, everyone has things to handle, and everyone's ability to do so varies. So who's to judge what is a hard life or who's problems are bigger?

I like happy endings. I root for the underdog. I like things simply stated. I acknowledge what is left unsaid. Some things just can't be expressed through words. Both love and pain make us grow, whether we want to or not. The only solution I see is trust in the Good Lord, whichever way he carries us. It's an act of faith that gives me hope.

Monday, February 7, 2011

Footprints with a Twist-Part I


Most people are familiar with the poem of "Footprints", and the usual reaction is a favorable one, "I really like that."

I disagree.

The end of the poem says that the Good Lord was present, actually carrying the individual at the lowest part of his/her life. That is the warm fuzzy-ending that makes everyone happy. Note that I am not disputing it. I have been carried many times, probably more than I know.

One thing is missing: how is the individual carried?

I suspect most people would envision a warm envelopment between a loving parent and child. I can easily see a father's hug shielding his child from the world. He carries his child effortlessly. He comforts his child, assuring that his child is protected. No harm will come. No hurt. His child is loved. His child needs to know nothing more, but His love.

My experience is radically different.

photo credit: almostsummersky

Footprints in the Sand

Footprints in the Sand
One night I dreamed I was walking along the beach with the Lord.
Many scenes from my life flashed across the sky.
In each scene I noticed footprints in the sand.
Sometimes there were two sets of footprints,
other times there were one set of footprints.
This bothered me because I noticed
that during the low periods of my life,
when I was suffering from
anguish, sorrow or defeat,
I could see only one set of footprints.
So I said to the Lord,
"You promised me Lord,
that if I followed you,
you would walk with me always.
But I have noticed that during
the most trying periods of my life
there have only been one
set of footprints in the sand.
Why, when I needed you most,
you have not been there for me?"
The Lord replied,
"The times when you have
seen only one set of footprints,
is when I carried you."
Mary Stevenson
Copyright © 1984 Mary Stevenson, from original 1936 text, All rights reserved