Autism: Surviving and Thriving

Fourteen years ago my youngest 3 boys were diagnosed with autism within a 9 month span. Devastation and grieving followed. Doctors gave me little or no hope, but they didn't know me very well. I refused to believe that my boys were doomed.

My boys are now young men, adults with autism. They are thriving, but every day presents its turmoil and challenges.

My family: husband Mike, sons Ryan 23 yr, Nicholas 21 yr, and Cameron 18 yr. (Ryan and Nick have autism; Cam has recovered from autism.) Our oldest sons, Michael 34 yr and Stuart 25 yr, moved out of the house. Ryan has also moved out, and is still working towards complete independence.

Tuesday, June 25, 2013

Autism: Paper Never Ends

I'm drowning in a sea of paper.  I sort.  I file.  I purge.  I shred.

I know science says that spontaneous generation doesn't occur, but every mom of a special needs kid knows otherwise!

I invest hours maintaining files, and I never seem to keep up.  My desk has files to be filed.  My table has mail to be sorted.  My counter has paper to go somewhere...

It's a thankless job, but worth doing.  Every step of every process demands proper documentation of diagnosis and prognosis.  Schools, doctors, insurance, and government might help IF the paperwork is complete.  The proper paperwork must always be filled out before anything is done.

Yesterday I talked with a counselor at the local community college regarding the potential enrollment of my autistic son.  The first words out of his mouth were, "Do you have proper documentation?"  I laughed, and I said, "How many years of documentation do you want?  I have every assessment, psychological evaluation, doctor's notation, specialist's recommendation, and school IEP since my son was three."  Silence followed.  He responded, "Well, most people don't have that much. I guess just bring the most recent."  Easy to do.

So as I keep this need for documentation in mind, I continue to sort, file, purge, shred. 


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