Autism: Surviving and Thriving

Fourteen years ago my youngest 3 boys were diagnosed with autism within a 9 month span. Devastation and grieving followed. Doctors gave me little or no hope, but they didn't know me very well. I refused to believe that my boys were doomed.

My boys are now young men, adults with autism. They are thriving, but every day presents its turmoil and challenges.

My family: husband Mike, sons Ryan 23 yr, Nicholas 21 yr, and Cameron 18 yr. (Ryan and Nick have autism; Cam has recovered from autism.) Our oldest sons, Michael 34 yr and Stuart 25 yr, moved out of the house. Ryan has also moved out, and is still working towards complete independence.

Sunday, February 24, 2013

Frustrating Week

I received Ryan's IEP report.  There were inaccuracies in it.  What's worse, is that the state agency received the IEP before I did.  The state is satisfied with the IEP, and says that Ryan's case is ready to go to the "redeterming" board--or whomever judges that.

I was stunned.  Why would the state be willing to knowingly accept incorrect information when the status of his disability could be jeopardized?  I thought we agreed that we want what is best for Ryan.

Also, I pointed out to our state case manager that there was no psych report included in the IEP.  She seemed to ignore that.  She replied that the MET simply wasn't done.

I asked the school psychologist if there was a report forthcoming.  I received it the next day.  I then forwarded it to the state case manager.  Her response, "Oh, I didn't have that."  It seems she didn't pay attention to my pointing out that the report was missing.

Then there's trying to correct the wrong information.  No one knows who or what the source was for that info.  It's taken a few days, but I think it's been corrected.  I had to write to several people, but patience there has paid off.

This has spun more questions and controversies, though, so there were several more problems to solve.

Just goes to show why the puzzle piece is the emblem for autism.  As soon as you think you have something figured out, SURPRISE--there's another piece to fit into the puzzle of life.

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