Autism: Surviving and Thriving

Fourteen years ago my youngest 3 boys were diagnosed with autism within a 9 month span. Devastation and grieving followed. Doctors gave me little or no hope, but they didn't know me very well. I refused to believe that my boys were doomed.

My boys are now young men, adults with autism. They are thriving, but every day presents its turmoil and challenges.

My family: husband Mike, sons Ryan 23 yr, Nicholas 21 yr, and Cameron 18 yr. (Ryan and Nick have autism; Cam has recovered from autism.) Our oldest sons, Michael 34 yr and Stuart 25 yr, moved out of the house. Ryan has also moved out, and is still working towards complete independence.

Thursday, February 6, 2014

I Can Do It!!

Cam
I love hearing my sons say that.  For too long my sons were hampered with sensory issues and lack of coordination, symptoms of autism.  Years of therapy have yielded young men who are capable of doing--doing what they want.
Stu--at the end of the day
Simple things like holding a pencil or crayon or running without falling were difficult or impossible.  Now my sons are doing tasks that neuro-typical teens do without thinking twice about it.

This is not to say that my boys don't have sensory issues.  They still do.  However, they are not as sensitive.  They know how to handle and resolve those issues.  That is powerful.

Over the weekend we started painting.  Usually, that would be a project that I would tackle alone. This weekend the boys all joined in the fun.  They had paint on their hands (tactile zing), in their hair, on their clothes.  One even stepped in the paint and lived to tell about it.

It became a family affair.  Grandparents, husband, kids, and I.  We finished the job that day.  The boys cleaned up.  They stuck with the job.  Incredible!!

Sunday, February 2, 2014

God, Family, Work

Via my distant cousin/relative Nick Ball:

Our family is a classic one of hard working immigrants, who got the "American Dream" by putting God, family, work in that order. Then working everyday to make it happen.........no one gave our family anything. Everything they got and passed to us, was not luck but hard work.

I wish every history and social studies book in America had that statement engraved in the front pages.  Life has no guarantees.  No handouts either.  Government entitlements can be given.  Or taken away.

I tell my sons with autism quite often that they can't count on federal or state funded programs to be available forever.  Budget cuts, bad economies, political polls, etc can determine what becomes important and then switch within seconds.  My sons must be able to survive ultimately by their own devices.

So while it's hard to see them struggle through life's hardships, it is a necessary lesson.  Again, my cousin states the lesson well:  

Everyone wants to help their kids. I see no problem in this, but making it easy for them just makes them dependent on Mom & Dad or the government instead of themselves. No one likes to see their kids struggle. But it is in the struggle that the true character of what they learn from home comes into play and benefits them in the long run...........Doing too much for your kids handicaps them in life and since things come easy if given, the incentive to work hard is destroyed......why work? ...there is always Mom and Dad or Uncle Sam!

This applies to all kids, so it's that much harder for our kids with autism to face life, or as my son Nick (not to be confused with cousin Nick) puts it, he has to face the real world.

Thus, the priorities are set:  God, family, work.

Monday, January 20, 2014

Drums--The New Music

Nick teaching Cam
We have more music in the house. A drum set found itself in our living room on Christmas morning.  We purchased it for all the boys, but we suspected that our youngest two would play it the most.

Nick took no time in breaking in the drums.  His first "at play" is below. When Nick was done, Cam exclaimed, "Whoa!!" He bent to see how big a dent Nick had put in the cymbals.  Oops.

I thought we had purchased a drum set for beginners.  After listening to Nick play, I asked him where he learned to play.  He replied that he had just watched and listened to his friends during band at school.  Nick seems to be natural.

The black set is sleeker in appearance than the pots and pans that they banged on in former years, but the noise is just as loud.  Within two days, we moved the drum set upstairs, knowing that it was a temporary fix.  I expect it'll take a few months before we find a permanent home for these noisemakers.

I love seeing Nick's face light up when he plays.  Lately, he's been improving and trying different rhythms with syncopation.  Quite an outlet for him!

  

Friday, January 17, 2014

Teamwork--Getting Along

Nick, Ryan, Cam working on a crossword puzzle
Although the younger boys all have autism, they are extremely different.  They have their own strengths and weaknesses, just like everyone else.  Together, they create an invincible team.

One of the life skills we have been working on is team work.  There is not much in this world that doesn't require working with someone else.  Whether it's going to the grocery store to buy food or see the doctor in his office, effectively communicating with others is simply a necessity.  Hence, teamwork.  If my sons can work together to solve a problem or finish a project, they can accomplish whatever they wish!

Not an easy task when teens with autism don't like to talk.  OR when one likes to talk a lot.  OR when one wants to talk but can't quite articulate his idea.  Each one of these ideas represents one of my sons.

I don't let them quit.  That is critical.  They finish what they start.

It helps when the project is dinner.  If they finish, they get to eat!!  An empty stomach is a great incentive.

Sunday, January 5, 2014

Beach Days Of Christmas

Nick and Cam 
The remaining days of the Christmas season our family journeyed to the beach.

In January, the beaches are not crowded, yet the fun remains.  The boys run along the coast, and sometimes they swim.  Mike and I walk to the local pier, talking about anything and everything.  Our family gets a chance to relax and unwind.
Mike

The fog greeted us the first day, but the following days were sunny and brisk.  The apparel varied from jeans to shorts, pending if the sun decided to hang out.  The guys decided to go whale watching while I enjoyed some quiet time. Then we dared outside dining--complete with heaters.
Nick

We rarely plan the entire trip.  We like having down time, and the boys need practice with spontaneity--a difficult concept for teens with autism.  So as the whim of an idea catches us, we may do it.  Or not.  No matter what, the best time is the time on the beach.

Cam

Friday, January 3, 2014

Money, Money, Money

Last Monday, I spent the morning with Nick at our local coffee shop.  It's one of the few places where the employees know Nick by name, and he feels very much at home.  (Not to mention, coffee is gluten free.)  Nick can relax and chill. As a consequence, I never know what surprises lurk here!

Today was no exception.  Nick surprised me with his understanding of abstract concepts of money, and he totally perplexed me with his lack of understanding of money.

First, the cerebral concept:  he has to pay for his own coffee.  Well, he doesn't have a job.  Yet.  With his school load and extra curricular activities, he has no time for a job.  My husband and I want him focusing on anything related to schooling. So he surprised me with his comment, "I can't waste my money on coffee like I did last year.  I like coffee.  I need a job, Mom."

Quite simple and straightforward. Typical for a teen with autism.

How does a mom explain to her son with autism that there are only 24 hours in a day, and he is already using them all?  I used a diagram to illustrate his activities and the lack of hours for a job. That didn't stop Nick.  He wants to earn his keep--a concept my husband and I have taught all our kids.  My only solution was to offer Nick jobs around the house for some extra cash.  AND he could get a job over the summer.  "Great!!" he exclaimed.  I am THRILLED that Nick understands the concept of money--earning it, spending it, saving it.

Then came Nick's lack of understanding.  He used a debit card at the coffee shop for the first time.  He swiped his card and got his coffee, "Cool!"  He took his receipt, and I logged on to the bank website so he could see the transaction.  He looked at me with confusion.  Money was missing from his account.

When we opened his bank account, the banker explained the debit card.  Nick said he understood. Obviously, he didn't.  I showed the amount to be debited from his checking account via his receipt, and he looked at me with total dismay?  "I have to pay my debit card?" he inquired.

I shook my head yes.  "The bank will give this money to the coffee shop."  Nick didn't like the idea of his money going out of his account.  He understood cash, but this electronic thing was confusing him.  He responded, "You'll teach me this money stuff?"

I reassured him I would.

I couldn't believe the complexity of monetary ideas:  one moment I was surprised that Nick understood the idea of earning his own money to spend, yet the next moment I was astonished that Nick didn't understand the idea of a debit card.

Knowing Nick, he'll learn this lesson quickly!!

Thursday, December 26, 2013

On The Second Day Of Christmas

We went shopping for some new items for the Christmas Tree.  We also purchased wrapping paper and Christmas cards.  Why now?  I like the 50% discount off the regular purchase price of these items!!  I usually send out cards after Christmas, and I'll use the solid color wrapping paper throughout the year.

We started celebrating the 12 Days of Christmas several years ago for many reasons.  I've blogged the whys and wherefores in years past.  I will reiterate the main reason here:  it is much easier for kids with autism to handle.  Less is more.  The less to process, the more enjoyable for all of us.

We stretch out the gifts and activities for 12 days.  That might sound expensive, but it really isn't.  We have a box for each day, and the gift is for the entire family.  For the next two weeks, we'll spend more time together.  The gifts are usually simple, but a few might be extravagant.  They always focus on family.

Best way to spend our effort, time, and money:  family!